helloooo.
so today was much better than yesterday. i think i was feel so restless and pointless yesterday because of the compasine (spelling error?) that they gave me, which is a drug for antinausea, but it has steriods in it, so it makes you kinda restless. let me tell you, that is not a good feeling, at all. not being able to sit down and do anything is like leading a pointless existance.
also last night, because of this compasine drug that they gave me, my jaws start twitching to one side, like the lower jaw would keep twitching to the left side, it scared me alot. they gave me some traquilizer and a heat pack to calm me down. but i was pretty freaked out.
it's a really good thing that my mom comes everyday to stay with me for most of the day, otherwise i would be totally lost. it's times like these that i realize how blessed i am to have such a supportive family, and i konw i've said this before, but i'm feeling it ever so much now. my mom being here makes me smile, and helps me get through the hard tasks of the day, and the restlessness, and when she leaves at night, it really makes me tear up, because i think how much i love my mother, and how much she must love me, to go through with all of this with me.
i am also very greatful to my father and brother, they've been skyping (video conferencing with me)from home. it's been an enjoyable experience.
i am crying as i type this, because i am over come with emotion.
well onto the latest news. i started TBI today, which is total body irradiation. basically they have this huge machine and they shine radioactive waves onto me, while i sit crawled up in this strange position. i had to go at 6:45 am and then again at 3pm. usually though it's from 7-9am and 1-3pm, but the actual radiation exposure is not for 3 hours, it just takes a long time to set up, it actually is only about 10 minutes, give or take. if you could, or find time to pray during those times in your day, please pray that God will protect all of my internal orgrans from damage, since i would love to be able to have them healthy after the transplant! I also prayed throughout the radiation, for protectionand praise for allthe people praying for me.
well it's day 04, and so that means i have day -3, -2, and -1 before my actual transplant. hopefully God will be merciful to me and not let me stay in the hospital for too long, i hate feeling like a caged bird, and i do want to go home, and breath the fresh air.
but it does give perspective to normal living, the things we usually take granted for.
anyways, i'm glad i'm not as restless today, and can sit down and type all of this for people who follow on my situation. thanks again, and your care is not forgotten!
I love you mom and dad, and aaron! :)
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Hi Sarah,
ReplyDeleteI am so moved by your courage, your optimism, your loving toward your family, and most important your trusting in GOD.
Keep up your good work. I love reading both you and your dad's blog. And remember a lot of people pray for you.
Aunty Xiaodong (from RCCC)
Psalm 23
The LORD is my shepherd, I shall not be in want.
He makes me lie down in green pastures,
he leads me beside quiet waters,
he restores my soul.
He guides me in paths of righteousness for his name's sake.
Even though I walk
through the valley of the shadow of death,
I will fear no evil, for you are with me;
your rod and your staff, they comfort me.
You prepare a table before me
in the presence of my enemies.
You anoint my head with oil; my cup overflows.
Surely goodness and love will follow me
all the days of my life,
and I will dwell in the house of the LORD forever.
Hi Sarah, I come again! ^-^ I am very happy to know you are better today. I think it is normal to feel uncomfortable and restless because of the drug. It's not your fault. If I were you I couldn't do what you have done at all.You are an amazing girl! And indeed you are so lucky, having a supportive family. Your mom and dad love you very much! I believe if possible they would suffer instead of you. Your pains are from the boay and their pains are from the hearts. So keep going on, don't let them disappointed. Remember to smile and forget to fear.
ReplyDeleteFighting! *^-^*
Sai
Hi Sarah,
ReplyDeleteGot your blog's URL from church. Thanks for the detailed updates of your treatments. Now I can pray for you and your parents specifically. Your writings are so insightful and the "HeHes" and the "HaHas" certainly helped me going through my days. Hillary was right about you being very funnay at Arizona STM.
Keep posting, Sarah! You are my inspiration.
Love,
Auntie Esther (mom of the 3 Hs)